A genome-wide cancer study based in Newfoundland labeled participants “unrelated,” despite drawing from a founder-effect population known for deep ancestral ties. This editorial unpacks how Memorial University researchers bypassed consent, ignored relatedness, and turned a genetically unique population into academic capital—while denying locals access, feedback, or ethical oversight. Featuring the rarely discussed Alldrice syndrome, this article confronts data colonialism and the illusion of advocacy in modern genomic science.
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